Tag Archive for Colorectal cancer

CCA announces photo caption contest!

And who could blame them – this photo of Pittsburgh Steelers‘ players Piotr Czech and Willie Colon is, in the words of the Colon Cancer Alliance (CCA), just ‘screaming for a catchy caption.’ I agree. And the folks at CCA decided to use this photo (courtesy of photographer Dirk Dachs, Bad Monkey Productions) to help generate a little awareness in advance of March Colorectal Cancer awareness month.

Have you got a catchy caption for this shot of Czech and Colon on the sidelines? Submit your captions to news@ccalliance.org by February 25, 2010. The best caption will be featured in the CCA’s March newsletter. Winner will walk away with bragging rights and a free CCA T-shirt.

My caption? What are *you* waiting for? ;) caption contest

Reblog this post [with Zemanta]

Did you know how to prevent your cancer?

mediterranean diet in woking
Image by Kai Hendry via Flickr

Thursday, February 4 is the fifth annual World Cancer Day, sponsored by the International Union Against Cancer (UICC). Their slogan this year – the third in their Today’s Children, Tomorrow’s World campaign – is:

Cancer Can be Prevented, Too.

When I read the tweets announcing that slogan, my first thought was o. m. g.

Anyone who’s spent any time in cancer support groups, whether face-to-face or online, has seen the self-blame-game played in a thousand variations. Newly diagnosed and treated patients are desperate to figure out why me?

What could I have done to prevent this from happening to me?
or
I’ve had surgery/chemo/radiation – how do I keep the cancer from coming back?

There are a hundred answers besides the latest treatments and chemo regimens. Compulsive exercise. Rigorous (and often unsubstantiated) dietary changes and restrictions. Supplements. Alternative therapies. Coming (or running) to jesus. Crystals. Meditation. Wheatgrass drinks with every meal. Juicing, or juice fasts. Colon cleanses. Coffee enemas (you can’t make this stuff up.) Prayer circles and healing ministries. And those are just the support groups.

Let’s not forget the media reports that latch onto the latest sound byte – drink red wine, don’t drink any alcohol, dark chocolate is the best preventative, sugar will feed your cancer, a mediterranean diet (which of the 15 mediterranean countries has the perfect one?), don’t eat red meat, don’t eat processed meat, begome a vegan, I cured my cancer by forsaking chemo and eating mushrooms, and on and on and on.

The true danger in all of the self-doubt is not that we examine our lives and our habits. In fact, after a life-changing event like a cancer dx, a little self-examination is a healthy thing. But the true danger is in assigning unquestionable self-blame for making past choices. What we’ve done is in the past, and we may not have believed (at the time) that our choices were inappropriate. The true danger is that no matter what the ‘preventative’ advice, there is somebody (maybe a lot of somebodies) who did exactly that prevention method — and still got cancer.

I was dx’d with stage IV rectal cancer with extensive mets to my liver. I’d had eight years of fecal occult blood tests (FOBTs) which are the standard of care for preventative screening in people under 50 who have no family history of CRC and no symptoms. That’s right – NO SYMPTOMS. My cancer was silent but deadly, and by the time I had symptoms – a bare eight weeks before my dx – my symptoms were life-threatening. I lost weight (3 lbs/week.) My liver enzymes shot to triple the high normal value. I began to experience liver pain. I was unable to regulate my temperature; if I got chilled, I stayed cold.

Those were my symptoms. I didn’t have years of blood in my stool, bloating and changes in bowel habits or stool that I ignored.

Oh, and did I mention that for most of my 20s and 30s, I was an ovo-lacto vegetarian or pescatarian (fish-eater)? Yep, I naturally followed a version of the ‘mediterranean diet’ that is now so highly touted as cancer-protective. I guess I chose the wrong mediterranean countries (Italy, Greece, Spain, Portugal, Lebanon, Morocco. Too bad I didn’t make better choices from the other countries that surround the big inland sea.

I exercised too – a regular gym rat. I was always a little overweight, the high end of the body fat percentage at around 28%. But I hit the gym to lift weights and do 15 minutes of cardio every other day, 24/7/365. Only injury kept me from the gym – and even injury didn’t stop my exercises as I worked the body systems and parts that weren’t injured.

I’m not sure I could have prevented my cancer.

I know that it makes me a little crazy when other people preach prevention as a way to raise awareness. To me, it’s kinda like preaching abstinence to kids in lieu of answering their questions and teaching them how to be responsible about their sexuality.

Prevention? Sorry, UICC – that horse has left the barn.
Do you feel like you could have, or should have, had better/different habits which would have prevented your cancer?

Reblog this post [with Zemanta]

Look to your right – it's not all about me!

WordPress Logo

Image by koka_sexton via Flickr

When I started writing this blog, it was all about me — what I was feeling, my treatments, my surgeries, my struggles, my doctors. But as my life out loud lasted longer and moved into remission, and then recurrence, and now back into remission, I wrote here about different subjects. Some of my other passions (as you might have noticed from reading older posts) are my dogs, dog training, research, camping and cooking. This blog has become very personal, and for the most part, it’s still all about me.

But now and then I’ve written about causes which inspire me: the lifestyle study examining cancer prevention which is taking place in NY state’s Mohawk Valley; the foolishness of some proposed NY state canine legislation; Yoga Bear‘s efforts to get funding for programs that bring yoga to cancer patients; the Army of Women’s efforts to bring more women into cancer patient research. And the last few days I’ve mentioned Everything Changes, Kairol Rosenthal’s blog about living with a cancer diagnosis in as a 20 or 30-something adult.

Kairol writes a great blog, one that makes me think (in a good way) about how I’ve chosen to live with cancer. As much as I enjoy her blog, it’s only one of the links in my sidebar. So today, it’s not all about me. It’s time to spotlight some of the other folks who make up my blog roll. Those links in the right-sidebar are there because I find their blogs or the sites interesting, thought-provoking, inspiring — and sometimes they make me laugh out loud (LOL is on purpose an acronym for my Life Out Loud.)

Casa Az is my friend Azahar’s personal blog. Like me, Az is a stage IV cancer survivor. Unlike me, she’s an American ex-patriot (Canadian) living abroad in a place I’ve always wanted to visit: Seville, Spain. On her site, you’ll also see links to her beautiful photos at Azahar’s Sevilla, Azahar’s Kitchen, and Sevilla Tapas. Dealing with cancer outside of the battered US health care system is very different from what I’ve experienced here, and sometimes orders of magnitude more complex. Az inspires me daily, mainly because most of the time she lives her life and doesn’t talk about cancer.

Dr. Mike Eades’ Protein Power Blog can cover any subject that crosses Mike’s radar, but it most often focuses on diet and nutrition research. I’ve been a low-carber since 2002; some of my docs think my diet may have helped me withstand the rigors of over 75 chemo infusions, three surgeries and 25 days of radiation. I’m not going to argue; low-carbing just makes me feel better. Mike’s trademark post is an analysis of the latest hot-topic nutrition study — and he generally can make even the most complex nutritional science interesting and accessible.

The author of My Cancer Deployment calls herself ‘Sugarmouth O’Riordan.’ Be warned, this isn’t a sweet-as-pie discussion of life with rectal cancer. The subhead for the blog says it all: You’ll find no pretty ribbons here. Sugarmouth spells out what she’s feeling, how she’s feeling with the appropriate asterisks included. Her blog is gritty and real and Sugarmouth always makes me think.

Whidbey Woman is a caregiver to her husband, Ron, a recurrent colon cancer survivor. She’s been journaling about her experience at Ron’s Road to Recovery. Mixed in with observations and thoughts about coping as a caregiver are tips for survivors like how to prepare as a patient when you’re about to start chemo again.

I met Rotorhead at the Colon Club, an online support community for colorectal cancer survivors and caregivers. Rotorhead’s Waterblog is about RH’s journey with cancer, and his physical and mental return to wellness. I think what I find most appealing about RH’s blog is that he’s done as much as he can, as often as he could, to focus on living his life. And he writes about surfing in Hawaii. When things were tough for me, I’d visit RH’s blog for the sheer vicarious joy of reading about his daily adventures on the ocean.

There are more blogs out there which talk out loud about survivorship; I’ll spotlight them in another post. Meanwhile, you might find some thought-provoking interest if you check out the links in my Blogroll. There it is in the sidebar — just look to the right. Survivorship isn’t all about me.

Reblog this post [with Zemanta]

My story, all in one place

When I started this blog, it was to set down my thoughts about living with a Stage IV rectal cancer diagnosis. It was to tell my story out loud, and help me find a path through all of the last five+ years.

I’ve told the story many times — to newly diagnosed patients, to medical professionals, to co-workers and friends. But until today, I’d never really read my whole story all in a row from beginning to now, set down in one place.

This month, in the September Colon Cancer Alliance Buddy Program newsletter, CCA turned the spotlight on me. When Buddy Program co-coordinator Jeannie Moore asked me if I’d be willing to be in the spotlight, she asked if I’d share my story. So I wrote down it all down; today it was published on the CCA website as Pat’s Story in the Personal Stories section, under Stage IV.

I’ve been working as a CCA Buddy since I had my own first buddy, right before my first liver surgery in 2005. Buddies give support to other patients and caregivers as they navigate cancer treatment and their lives as patients and survivors. My story there is from beginning (diagnosis) to now, because my story is still being written. I’m not done yet — it’s not over ’til the fat lady sings.

Typically I don’t refer to my docs by full names (to preserve some shred of respect for our doctor-patient relationship). But today, reading my story all in a row, I want to name you all proudly and gratefully. I want to say each of your names out loud, in print, so that they are recorded somewhere forever, all in one place.

In central New York, my team includes Erik Daly, PCP; James Yurdin, neurologist; Joel Bass, urologist; Jeff Kirshner, oncologist; Dennis Kotlove, radiation oncologist; Jim Spano, ACSW (who helps me find sanity); and the wonderful staff of Hematology-Oncology Associates of Central NY.

In Manhattan, my team includes Nancy Kemeny, oncologist; Martin Weiser, colorectal surgeon; Brett Carver, urologic oncologist; William Jarnagin, hepatobiliary surgeon; all of the wonderful staff in CT scanning (we’re closing in on #60, gang!), the amazing nurses on the 15th floor at Memorial-Sloan Kettering main campus hospital on York Ave., and many other members of the MSKCC team who are too numerous to mention.

I couldn’t have done this without any of you. And while we may not always agree on everything, I’m awfully glad your efforts keep me around to have the conversations. Thanks, gang.

Reblog this post [with Zemanta]