Tag Archive for death

Funerals and passing time

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Sooner or later, a cancer patient has to confront the passing of time in one of the hardest ways – by dealing with the death or funeral of a close friend (or by planning her own funeral.)

I’ve never been comfortable at funerals. Perhaps two of the best were my friend Tim’s memorial after he passed from complications due to AIDs in the mid-90s, and my old boss Donny’s memorial in a church on Onondaga Hill that felt like a garage or a fire hall.

At Tim’s memorial, we gathered in May Memorial Unitarian church, and shared stories of his life, and his struggle with the disease. Religious and non-religious, gay and straight, men and women we stood to salute him, and then walked up the hill and held hands in a circle in the Thornden Park arboretum where his partner Russ planted a tree in his memory.

At Donny’s memorial after he passed from complications due to pancreatic cancer, his political friends and his fire department friends and his family stood to one side, while his old co-workers (me among them) stood in the back, together, and listened to a preacher talk about celebrating life, being in the moment. Again, it felt very one with the buddhist emphasis on mindfulness that softly guides my own days.

Both Tim and Donny’s deaths were expected, from critical life-threatening illnesses. But for me, it’s the death I didn’t see coming that is the hardest to handle.

In 2006, fresh off my liver resection, I ran into Joseph again while checking AOL mail. Joseph. Where to start? Joseph was my flirtation with how the other half lives, a millionaire media/PR guy living in NYC on West 26th St. and 6th Ave. We met at an online media presentation sponsored by SU, and then stumbled into each other again in an AOL chat room, back in ’91 when people actually paid money for hours of online time.

We emailed. We liked what each other had to say. We moved our conversations to the telephone. We talked for hours. One conversation led to another, and to an invitation to join him in NYC for a weekend at the end of February, 1991.

Joseph was, by his own description, a brilliant mind. He was a finalist on Jeopardy. He earned his MBA from Cornell before he was 21. Ten years older than I, I discovered that he’d been a part-time disc jockey for one of the local radio stations while he was attending Cornell – and I’d first heard his deep “radio voice” when I was a teenager.

He’d made his money early on by inventing the playback mechanism that the FCC insisted all radio stations apply to live telephone callers, and then later by inventing various mixing equipment musicians used and the GPS system that was the favorite for single and twin engine private planes. When he wasn’t inventing, he ran a media/PR company. He had friends in the music business, in aviation, in media – and I met many of them, and eventually traveled with Joseph to the trade conferences in those businesses where he was peddling his company or his inventions.

Joseph lived, in NYC and on the road, in a way that I hadn’t experienced long-term. He had two credit cards, but he always paid them in full each month and never carried a balance. He paid cash for most everything personal, especially in NYC. In a city full of amazing restaurants, he was inordinately fond of the little dive. There was this little mainly-breakfast joint over on 9th Ave. in the West Village that he loved for its Sunday brunch special, $6. He was frugal about some things – but he paid over $300 each month to garage his Jeep Grand Cherokee and his full dresser Harley. We did free things, rather than live the high life – and yet, on the road, we rented condo and ordered out and seldom economized.

Sometimes he would hand me a couple of hundred dollars and tell me to buy whatever I needed for a dinner party to entertain some out-of-town clients. He told me to buy whatever I liked (and paid cash) for two stained-glass windows for a redo of his kitchen. On one trip, I hadn’t packed anything suitable for an Upper West Side dinner party, so we went shopping – and from a small boutique in the village, he bought me a $300 little black dress, the undergarments that I needed, shoes, and rented me a fur (it was March, and all I had with me was a down jacket.) When he wanted something, he never asked the price – just said, “that one is perfect” and paid for it. On the other hand, he could haggle on Canal St. or with a printing supplier with the best of them.

He lived on an entire floor of the building at W. 26th and 6th Ave, in a loft he’d renovated himself. There was a door through the bedroom closet into his media company offices. He bought full health insurance plans for his five employees and himself. He’d had testicular cancer in his 20s, discovered when, during his loft renovation, he sliced his pinky and had to have stitches at St. Lukes. In their routine exam, they found a lump. Radiation and the testicle removal, and he was done with cancer. And he was continually mystified that the guy at the deli and the flower guy knew me by name, but never greeted him at all although he’d lived in the neighborhood nearly 20 years.

We were together, long-distance, for just about three years before I broke it off. Joseph’s concept of infidelity was “if she doesn’t find out about it, it didn’t happen.” My concept differed. We had an open relationship, and it wasn’t so much that there was another woman … but that he’d lied to me about it. I took the “if you’re going to lie about this, what else are you going to lie about?” In the beginning, I’d told him if he ever lied to me, it was over. He lied. I caught him. Millionaire or not, it was over.

When we ran into each other in 2006, I told him that I had stage IV rectal cancer. He was surprised, and concerned, and he wished me well. He was living in Florida, he said – on a horse breeding farm with a new woman who had surrounded him with animals and a slower pace of life. He’d had what he called a “cardiac event” in 2005, and felt that he was learning to live a more relaxed, less frantic life.

Two days ago, I got an email from his old email address, with a link to something that was clearly a commercial website. When I saw COMPELLERONE@aol.com, I remembered the buttons he’d distributed at a music conference we’d attending in San Francisco – Compel, Excite, Dominate. They were three words that described his mixer – and Joseph – to a tee.

I sent a response: Joseph, I think your email’s been hacked. I hope that you’re well. P.

Yesterday I received this reply: This is Joseph;s (sic) friend Elaine. His acct has been hacked. I am fixing it now. Unfortunately, he is not well. He passed almost 4 years ago.

Somehow, although I knew that this could happen (Joseph wasn’t in the best physical shape), I didn’t really expect that response. It shook me a bit…maybe more than I wanted to admit. The possible but unexpected is always the thing that throws me the most. I spent the day taking serial naps, broken only by taking the dogs out for walks.

But today, I shook it off, and took the girls to the dog park to enjoy the brilliant sunny fall day. Tomorrow, I’m going to try to make recurrent support group for the first time in almost six weeks. Some people weren’t doing so well six weeks ago – Joanne, who introduced me to the group, for one. I’m not really up for another unexpected expected passage of time.

But avoiding group isn’t going to keep bad things and the natural course of life from happening. It’s time to go back to group, to get the support I need – and it’s time to be in the moment, celebrate lives well lived and salute the passing of time.

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Father’s Day

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Father’s Day is not an easy time for me.

My father died in 2007, in March. He couldn’t be interred until the cemetery he and my mother wanted to use was opened for the spring. Thaws, unexpected snowfalls, a crime scene (some of the burial plots on a hill in the cemetery eroded…) – all contributed to delaying his interrment.

My mother decided that Dad would be interred and the graveside services would be on = Father’s Day, 2007. That decision took a day intended to be a family gathering and cast over it a spell that I can’t seem to shake.

It was a brilliant, beautiful, sunny and hot as hell day. I spent most of it indoors. I didn’t want to go to strawberry festivals, have a barbeque, or even visit with people on this day. I want this day to be special. Private. Quiet. I would even prefer to be out of town, doing something that doesn’t involve me celebrating the day we buried my father.

He wasn’t an easy man to live with. It turns out that he’s not an easy man to remember in death, either.

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Watching the Kentucky Derby with my dad

On Derby Day (May 1), I made it home from my Saturday errands in the late afternoon. I fed the dogs, but although it was a beautiful central New York afternoon, I didn’t take them on a longer walk. I went inside, and turned on the TV. I watched the Kentucky Derby – a race full of slop and rain and mud – and I remembered my dad.

May 2 was my dad’s birthday. He would have been 83 years old. He died on Friday, March 23, 2007, just six weeks before his 80th birthday.

My dad was a difficult man to live with and a difficult man to love. He was a diamond seller by day, but for all of his life he was first and last a horseman. He was a lifetime member of the Limestone Creek Hunt Club. For most of my pre-teen years, he had a second job as the steward at Vernon Downs, a local harness racing track, where he started every race (before they had electric, autostart gates.) Later, when my dad was in his 70s and before the dementia made it difficult for him to focus, he partnered with his old track cronies to train their horses for them.

I don’t think he ever got his trainer’s license in NY state, but even 15 years ago, you could co-train a horse at a NY track as long as a licensed trainer was also listed on the entry. Dad owned and resold thoroughbred crosses as heavy hunters – big horses designed to carry big men in the cross country over fences sport of foxhunting. But he always kept an interest in and owned a few standardbreds, and he raced a few trotters and pacers (mostly pacers.) I have memories of meeting my dad at the track to watch one of his first co-trained fillies run. My brother Jeff came in from out-of-state and dad teased me that Jeff beat me to the track even though he’d had a 15-hour drive and I was only an hour away.

I used to joke that I grew up on the backstretch – not really true, since I was probably only at the track a dozen times between age 5 and age 10. But I have very clear memories of those barns and the track atmosphere. My first pony was a stable pony bought from a trainer at the track (as was my first goat – but that’s another story.) When I was very young – five or six years old – I was discovered hand-feeding a tough horse named Night Flight, a horse with a reputation as a bad actor in the barn. But he was gently with me, and later when he came to Fayetteville to live in our off-track barn, Night Flight and I became good friends. The stable help found him difficult, but I could groom him and muck his stall without arguments (it might have been the apples I always carried.) At any rate, Night Flight helped me discover that working with animals might just be my secret superpower.

When I was a kid, Kentucky Derby Day was an event in the Steer house. My dad worked at the jewelry store on Saturdays, but he was always home in time to watch the Derby, and then the Preakness, and finally the Belmont Stakes. I used to be able to name all of the Triple Crown winners and all of their jockeys. Watching the Derby (or any race) with my dad was a ritual. We’d check the racing form, watch the horses parade to the paddock, check the jockeys’ and trainers’ records. Was the horse a mudder? Was he carrying extra weight? If the horse was a filly, could she handle the distance? Would a fast horse break away too soon and then fade in the backstretch?

The night before the Derby, everyone had to pick a horse. No betting, of course, but always a spirited discussion of who we picked, and why, and congratulations if our horse was in the money.

And even with him gone, I still watch the Kentucky Derby. For my dad. Maybe with my dad, in one of the only ways we could ever share anything without a fight. When the first notes of “My Old Kentucky Home” rise up to accompany the post parade, I remember derby days from years past, and somehow all the other interactions with my father fade when I remember how he picked his horses, evaluated his jockeys, and watched the race.

This race helped me remember a happier time with you. Happy Birthday, Dad.

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